Please note: The below is subject to updates as sessions and speakers are confirmed

7:30am - Registration & Continental Breakfast

Welcome & Conference Overview

Terry Thompson

KDA President

Kennedy's Disease: Symptoms and Health Effects

Chris Grunseich, MD

NIH

Respiratory Issues in Kennedy's Disease

Noah Lechtzin, MD

John Hopkins University

Managing Falls: How to Optimize your Functioning to Prevent Falls

Joe Shrader, PT, C.Ped

NIH

Louie Lee, PhD, MCSP

University College London

SBMA Genetics: International Survey on Genetic Literacy and Awareness in Patients

Shinichiro Yamada, MD

Nagoya University

NIH’s All of Us Project: Prevalence of the KD Genetic Mutation

Dan Tsuma

NIH

KD Tips and Tricks: At Home and on the Road

Jameson Parker

KDA VP

Dale Traxler

KDA BoD

Breakout sessions for Patients, Carriers, and Spouses/Caregivers

Additional optional breakout sessions for these individuals on March 1st

5:00pm-6:30pm Wine & Cheese Poster Sessions

KDA Grant Recipients from 2023-2024

Dinner on your own

7:45am- Continental Breakfast

Introducing the Canadian Protocol for Managing KD

Kerri Schellenberg, MD

USask

Managing Kennedy's Disease Symptoms

Advice from clinicians on managing fatigue and other topics, followed by Q&A

Chris Grunseich, MD (NIH),

Kerri Schellenberg, MD (University of Saskatchewan)

Tahseen Mozaffar, MD (University College London)

Carlo Rinaldi, MD

Luca Zampedri (University College London)

Noah Lechtzin, MD (John Hopkins University)

Angela Kokkinis (NIH)

Abdullah AlQahtani, MD, PhD

The Latest in Mobility Devices

Talk & Demo

Jim Kissling

Autofarm Mobility

Beyond Exoskeletons: HAL as a Cyborg-based Neurorehabilitation Medical Device for SBMA and Other Neuromuscular Diseases – Clinical Trial Results and Long-Term Outcomes on Combined Therapy with Leuporelin

Takashi Nakajima, MD, PhD

NHO Niigata

KD-101: introduction to Kennedy's Disease Biology

Ed Meyertholen, PhD

Keynote Address

Dan Jacobs, KD Patient and Award-winning Chef

Approaches to Developing a Treatment for KD

Al LaSpada, MD, PhD

UC Irvine

Timeline for Drug Development

Eric Park, MD

Update on Clinical Trials

AnnJi Pharmaceuticals

Dr. Christopher Grunseich, NIH
Arvinas Therapeutics

Dr. James Gregory
Nido Biosciences

Dr. Vissia Viglietta

Researcher Roundtable/ Q&A

Chris Grunseich, MD

Andrew Lieberman, MD, PhD

Diane Merry, PhD

Maria Pennuto, PhD

Carlo Rinaldi, MD

Al LaSpada, MD, PhD, FACMGG

6:00pm - Gala Reception

7:00pm - Gala Dinner

8:00pm - Silent Auction

KDA Board Meeting and Lunch

Sunday - Time TBD

Poster Sessions on Sunday and Monday

• Optional Breakout Sessions for KD Men, Spouses/Caregivers, Carriers
• Molecular and Cellular Mechanisms
• Disease Models
• Therapeutic Development and Drug Discovery
• Clinical Feature and Natural History
• Biomarkers and Diagnostic Tools
• Other: TBD